Why It Matters
Every child deserves the opportunity to thrive through play
The Challenge we face
In Aotearoa, too many neurodivergent children and children with disabilities are being left
behind without the support they need to thrive.
Families often face long waitlists, inconsistent services, and systems that aren’t built
with our children in mind. Access to early intervention, inclusive education, and
community-based support can feel like a battle, especially for those who are navigating
complex diagnoses or living in under-resourced areas.
For many, it’s not just about funding, it’s about feeling heard, respected, and understood.
Parents become advocates, case managers, and educators, and often with little help. And
children who should be playing, learning, and connecting are too often isolated or
misunderstood.
Voices from our community
These are the stories that shape us. Honest and heartfelt conversations with parents and messages from the community. We’re proud to share them, not as testimonials, but as windows into the real impact we have.
Olivia’s Story
“You don’t get it until you’ve lived it.”
Linda shares what it’s like raising a child with complex needs, and why spaces like
ours aren’t just helpful, they’re vital.
“She was finally allowed to just be herself.”
—Linda, Parent
When Linda’s daughter, Olivia, was born during COVID lockdowns, the isolation made it
nearly impossible to understand what was typical and what needed support. As a single
mother, she fought through delayed diagnoses, broken promises, and a system that seemed
more interested in ticking boxes than truly helping.
“Everyone says they want to help. But no one actually takes the time to understand
your child, or you.”
The turning point came when Linda was introduced to Spectroom by chance. What she found
wasn’t just a service, it was a lifeline.
“For the first time, Olivia started speaking. She could tell us what she felt. What
she needed. What she liked. I was finally able to toilet train her. The changes were
life-changing.”
For her and Olivia, Spectroom isn’t just a service. It’s where they found a place in the
world that often refuses to make space for people who don’t fit the mould.
“It gave us hope where there was none. And I don’t know where we’d be if it didn’t
exist.”
Juju’s Story
“I finally found real support, not just words on a page.”
Shams opens up about the loneliness of navigating the system, and they joy of seeing
her son be understood.
“He’s happier here than anywhere else.”
—Shams, parent
Juju’s journey started early, when he was just one years old, Shams noticed her son
wasn’t reaching the usual milestones. After a long frustration year chasing answers
through doctors and specialists, Juju was diagnosed with autism. It was a shock, she had
never really known much about autism. At first denial took hold. She thought maybe it
was just a delay, but as reality set in, so did the struggle to find real support.
“The ministry sent people to our home, but it was all just paperwork and visits that
didn’t teach me how to help Juju or connect with him.”
Everything hanged when a physiotherapist from Starship Hospital told her about
Spectroom. At first, Shams was hesitant, unsure and needing courage to visit. But once
Juju stepped inside, the place felt like a revelation.
Then there was Maria, a specialist at Spectroom who quickly connected with Juju in a way
that no one else had.
“From the very first session, Juju made eye contact, smiled, and engaged with her.
Maria understands because she’s a mum to an autistic child too, she knows what it’s
like.”
Today, Juju is more connected and confident. He looks forward to walk through our doors,
and that joy is everything to Shams.
“It’s given me the tools to support Juju and believe he can thrive. The support here
has been real, not just empty promises. I tell every family who feels lost or stuck to
come here.”
Kyuss’ Story
“They see him for who he is.”
Georgia shares her journey of raising her autistic son, highlighting the heartbreak
and hope she experienced along the way.
Before Georgia found the right support, she spent years searching in the dark, scrolling
late into the night, chasing services that made big promises but never really saw her
son. Kyuss is non-verbal, autistic, and full of heart. But too often, he was overlooked,
treated like a diagnoses, not a person.
“No one asked about who he is. No one wanted to know him.”
It was exhausting and lonely. Georgia learned to lower her expectations just to survive
each outing. Then she found Spectroom.
What changed everything was discovering a place that didn’t just include Kyuss, it
embraced him. At Spectroom, he’s not pushed to the side-lines. He’s met where he is.
“I didn’t even know a place like this could even exist. He’s just so happy here.”
Georgia isn’t spending every moment on edge anymore. She doesn’t have to explain or
fight to be heard. She can just breathe.
“I feel like I’ve achieved something. I found a place where my son belongs."
Letter of Support
Stand Tū Māia
Preshenka Pillay - Education Services Team Leader / Pou Heke
The Stand Tū Māia village in Tāmaki Makaurau have been able to bring a small group of
tamariki to visit your sensory gym facility twice over the last month. These visits have
been more beneficial than we ever could have predicted. At Stand Tū Māia we have seen a
significant increase in 5 through 8-year-old tamariki referred to our service for
support concerning behavioural and neurodiverse needs. Meeting the high and complex
needs of these tamariki has led to an adaptation in many of our programmes as we seek to
find creative ways to support tamariki with self-regulation, social competency,
self-identity, and belonging.
This collaboration with Spectroom has been the perfect addition to our kete of learning
experiences for our tamariki. The sensory gym is a stimulating, fun, and a safe space
for our tamariki to explore, play, learn, create, socialise and be themselves. The gym
itself is created with such consideration for the sensory seeking but also the sensory
avoidant. Over the two visits that we’ve experienced at Spectroom, we’ve observed our
tamariki engage in purposeful play with the use of different sensory resources to
support their regulation.
Upon our most recent visit, we observed one of our most complex tamariki, not only
engaged positively with a peer, but also showed empathy and compassion for others which
is a significant shift in his behaviour. While the tamariki thoroughly enjoy a play at
Spectroom, we can also see the incredible impacts that this therapeutic environment has
had on our tamariki overall wellbeing.
We truly appreciate the effort and care that it takes to provide a space such as this
for our tamariki to enjoy and we look forward to what the future holds for our
collaboration with Mac and the team at Spectroom.
Letter of Support
Aim High Charitable Trust
OK KIM - Chair Trustee
Dear Mac and Maria,
I am writing on behalf of Aim High Charitable Trust to formally accept your generous
offer of providing free services. I am pleased to confirm that Spectroom Charitable
trust has graciously offered us free access to Spectroom Play Zone for the students and
teachers of Aim High Education Centre.
Aim High Charitable trust is a disability support organisation in Auckland that operates
Aim High Education Centre and a non-profit enterprise called Aim High Cafe for people
with disabilities. The education centre provides a day service and holiday programme for
all ages, and the cafe offer volunteering opportunities and vocational training for
individuals with intellectual disabilities.
As a non-profit organisation, we rely on support from donors and volunteers. However, it
is always challenging to provide a wide range of activities and maintain a stable
teaching staff for our day service and holiday programme. Your offer allows the children
at our education centre to broaden their experiences in the safe and secure space of
Spectroom’s play area, without any financial burden.
We would like to establish a lasting cooperative relationship between Spectroom
Charitable Trust and Aim High Charitable Trust.
Once again, thank you for your support. Your contribution has been greatly appreciated.
Why waiting
isn’t an option
When children with disabilities are overlooked, the cost isn’t just emotional—it’s
developmental, social, and lifelong. Delays in diagnosis, lack of inclusive spaces, and
limited support leave families feeling isolated and children without the opportunities they
deserve.
Without early intervention and the right environments to thrive, children miss key windows
for learning, connection, and growth. The longer they wait, the harder their journey.